This has not been the best of days, in addition to the absurd heat out there (112 today, calling for 114 tomorrow), I took my husband to the ENT and then had a discussion with both my husband’s and my mother’s neuro. (my husband’s is also mine and he (DH) opted for me to talk to Dr M rather than himself)
Mom’s neuro was an interesting conversation. She’d gotten into a conversation with my mother about a former job. She wasn’t sure what to think about it because the woman she knows would never have been able to survive that job, much less thrive as my mother said she did. Yet, my mother is insisting there has been no functional changes and my sister agrees. To me, this just proves that my sister has no respect for my mother … and never has. She has always seen herself as ‘better than’ the rest of us.
I told the neuro my opinion, mom has lost SIGNIFICANT functioning, and at one time was aware she was changing …that was about 10 years ago. During this time she had a couple of minor strokes. But she has had a dramatic personality change as well as a severe decrease in functioning. While working on her masters, a classmate had to give an IQ test, she used my mom as a guinnea pig (which she tested high enough the professor decided to regive the test to verify). She tested in the 150-160 range.
In 2004, she was tested again .. a full neuropsych battery. The neuro psych ignored everything I said about changes in her functioning, comprehension and loss of social skills and believed mom when she said she’d always been ‘this way’ and it’s ‘just ADHD’.
Her IQ was 103. I asked for a retest and it was, by another psychologist who didn’t do the full battery, just the IQ and she scored 98.
This to me sent off all kinds of alarm bells, but only my neuro (hers at the time) agreed. So, my mom did what most in denial do and changed neuro’s. Her neuro says she’s seen a decline of functioning in the last 4 years and is quite concerned. I told her that I’ve been concerned for a decade aned it’s quite the relief to have support.
Her official diagnosis is: Dementia NOS … not much help.
I know nothing about this diagnosis, but it is quite the relief to finally have a doctor acknowlege that this once vital, active, and highly intelligent woman who can’t understand simple directions, drives a car into a public library (literally) and then giggles because no one got mad and says “it was obviously not a problem, because no ne was upset with me.
Then there is Don. He’s been having increased numbness in his hand, the other night he dropped a hot cup of coffee as his hand refused to grasp the cup. He’s fallen several times lately, with his left knee just buckling and giving out. (this morning was last fall). Discussion with neuro says that this is the progression of damage we were ‘expecting’ and that there isn’t anything that can be done by doctors in t6his area. Given Don’s unwillingness to go outside of our area to seek help, granted, no one here can even start to fathom what would be involved to really give any kind of help.
The symptoms he has, Dr. M says is consistent with further compression on the displaced spinal cord at c5/c6 and c6/c7. There is also a visible increase in scoliosis curve from the last measurement (no one has ever told us what degree of curvature that he has. It didn’t occur to me till after I hung up that ‘last measurement’ meant that he’s (neuro) has the number).
His hearing is shot, but that’s genetic/age. His mother started to wear hearing aids at 52 and he’s 55. His loss is ‘significant’ which I knew that … been trying to tell him for several months .. I listen to the TV at a 36 (sound range on our TV is 1 to 100) he at 76. (then wants me to carry on a conversation OVER the blaringly loud TV.) He swears that americans have taken to the habit of mumbling .. no, not anymore than has been …
The hearing loss is annoying .. but not significant.
He needs sinus surgery and there is one where they put in a ballon and open the passage ways. It can be done with a local and takes about 90 min to 2 hours. It’s not Mandetory, but would make his life more comfortable … he’s thinking about it.
Is today over yet?